The National Institutes of Health (NIH) has been tasked with implementing the National Plan to End Parkinson’s Act, following its approval as Public Law 118-66 in July 2024. The legislation aims to address the prevention, diagnosis, treatment, and management of Parkinson’s disease and related neurodegenerative disorders. The effort is being coordinated with support from the U.S. Department of Health and Human Services (HHS) Office of the Assistant Secretary for Health.
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The act mandates the formation of a Federal Advisory Council on Parkinson’s Research, Care, and Services, which will guide the creation and ongoing revision of the national plan. The council will include representatives from federal agencies, patient advocates, caregivers, healthcare providers, and experts in Parkinson’s research and treatment. It aims to foster collaboration across federal agencies, accelerate the development of therapies, enhance early diagnosis, and improve care coordination for patients and their families.
The national plan also seeks to address Parkinsonisms, a group of disorders related to Parkinson’s, including multiple system atrophy, corticobasal degeneration, progressive supranuclear palsy, and Parkinson’s-related dementia. By targeting these disorders alongside Parkinson’s disease, the initiative aims to improve outcomes for a broader population affected by neurodegenerative conditions.
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To support the council’s efforts, NIH has opened nominations for individuals to serve on the advisory body. Key roles include patient advocates, healthcare providers, researchers with Parkinson’s expertise, specialists in movement disorders and dementia, and representatives from nonprofit organizations. Thirteen federal agencies involved in research and care will also participate. The council will be co-chaired by leaders from NIH’s National Institute of Neurological Disorders and Stroke and HHS’ Office of Science and Medicine.
For more information on the National Plan to End Parkinson’s Act and the nomination process, interested parties can visit the NIH website.
Article by multiple RFHC contributors.
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